I can’t imagine how my family and I would have handled the finances on our own. I was 24 when I learned I was going to have to drop everything and start making a documentary about what it was like to have cancer. I was not totally crazy, I had cancer." PATIENT STORIES Providing hope, inspiration and sometimes invaluable lessons. You have the power to take any moment of your life — no matter how terrible — and decide what it’s going to mean to you. Reply. I was always under the impression you could only have mono once in your life. To read other stories of hope, please click on the links on the right hand side of the page. I was meant to beat cancer.”, "You have to be your own best patient advocate. Like a lot of people my age, I wasn’t particularly diligent about taking care of my health. After surgery, I had chemotherapy every two weeks. Stunned to be diagnosed with Hodgkin’s lymphoma in her early 30s, Stacy hurried to start chemo, and found it a lot easier than she had anticipated. Once he said that, I kind of knew that I had lymphoma. Racheli was diagnosed with lymphoma … ", “I have felt very fortunate to have these fine doctors to help me navigate my CLL/SLL journey and feel very positive on where my CLL journey will take me next.”, “Although I question my strength at times, I know that in the end everything will be okay. Stacy just couldn’t shake her … Learn about eligibility and appointments for COVID-19 vaccines. My dad worked at Nike for almost my entire life, so Phil Knight is someone I heard about ever since I tagged along to Take Your Daughter to Work Day as a little girl. })(); Everyone’s lymphoma story is unique and special. I already knew, whatever was wrong with me, I was going to make it better by turning it into a story. Share Your Story of Hope. Diane experienced Fox Chase care first hand when she was diagnosed with Hodgkin's lymphoma … He’s thought about how he … Lymphoma For Montgomery County Controller Diane Morgan, becoming a financial donor to Fox Chase Cancer Center was about much more than just writing a check. At the time of this diagnosis, I was studying to be a nurse practitioner and our class was learning to examine the lymph nodes. s.parentNode.insertBefore(gcse, s); Non-… Make it meaningful. var cx = '005478907086173191714:lvjpzd2hjti'; I was diagnosed with follicular lymphoma in 2011. Lymphoma Patient Stories Hodgkin’s lymphoma. Eight months later, I was still telling myself it was nothing — ignoring how tired I felt and the weight I was losing. When you’re 23, you don’t think of cancer as a possibility. L's Story - Her doctors doubted her reported symptoms & missed the diagnosis of lymphoma "The mailman was right, the doctors were wrong. The advice I would give anyone with cancer is this: Find a creative outlet. Some of the most common first symptoms of Hodgkin’s lymphoma can include: Swelling of the lymph nodes (painless), often in the neck, armpits, or groin area. It was, however, not an easy transition moving back into my parents’ house in Tigard after spending my early twenties living on my own in LA. Being alive is a bizarrely fascinating thing. This time, however, the two were determined to hold each other’s hands. Brianna Barrett's story. To submit your own story of hope, click here. My doctor and the nurse practitioner, Lisa Radcliff, were so encouraging and explained everything to me: Over the next six months, I was going to have 12 treatments of chemotherapy and then three weeks of radiation. My doctor sent me to Dr. Brett Sheppard at OHSU Knight Cancer Institute, a surgeon who is an expert at treating pancreatic cancer. Indolent Treatment Survey results: Follicular | Marginal Zone. I started regularly getting one-on-one counseling, and I joined a great group of fellow patients and survivors at the AYA writing group. The incredible support of my family and the social workers at the Knight Cancer Institute helped me stay strong and positive. Chronic lymphocytic leukemia (CLL) is a form of cancer that affects the blood — specifically a type of white blood cells called lymphocytes — and bone marrow. (function() { There are many many success stories with Hodgkin’s Lymphoma. You have to be the one doing everything you can to make sure you are getting the absolute best treatment possible. I will always remember coming up the stairs to see my husband, wondering what to say to him. What is leukemia? Some typical symptoms of lymphoma in adults … They end.” He said my cancer had a good chance of being cured. Fever and chills. ... We continued to volunteer our time as adult … "Ask for and graciously accept help along the way. In my case, my story … You can also submit your own story … Jeff, Diffuse Large B-Cell Lymphoma Survivor. How to tell him it was much, much worse than we thought. Alison shares her daughter’s story of fighting Non-Hodgkin Lymphoma, and offers advice to parents supporting their own child through cancer. My family and I are so grateful to the Knight Cancer Institute for the wonderful care and support they gave us. By the time I got to the doctor’s office that afternoon, my chest hurt so much I needed assistance just to lie down. Toward the end of chemo, I started doing short rides, and joined a program that helped cancer patients recover their fitness. I know that I was meant to go through this, to live, embrace and survive. CLL is the most common leukemia in adults. Non Hodgkin’s Lymphoma Stories Symptoms, Diagnosis, Treatment. It’s a fantastic resource to have so close to my hometown of Tigard. It really reaffirmed for me how important that process was for coping with trauma. 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